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My Published Article
Here is the link to my article published in Complex Child Magazine. It is called “Living at Natalie’s Speed” … I wrote it as a reminder to myself, and to anyone else who needs it, that one of the...
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COLD water
Do you notice when you prepare food how often the instructions say to start with a pan of cold water? Whether it is for boiling pasta, corn, rice, oatmeal, etc. the instructions invariably say to use...
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AFTER the Medical Appointment
As the parent of a child with special needs, our car knows the way to the local children’s hospital by itself. I honestly have NO idea how many times we have visited over the last 13 years, and I don’t...
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MMPP: My Most Popular Posts
Before and After Photos of my girlie-girl, Natalie Calorie Requirements by Age and Recipe Calorie Counts Feeding Schedule Using 2 Ounce Syringes Unclogging a G-Tube and Attachments Recipes and Other Info
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Eggs
I just read this over at Yahoo Health’s “8 ‘Scary’ Food Myths – Busted!” by David Zinczenko “Nutrition “Scare” #8: Eggs are Cholesterol Bombs! Perhaps the biggest nutrition myth is that eggs are bad...
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Too Hot To Handle – updated
Sometimes when feeding blended meals via g-tube, the food is actually too hot to put in the tummy! Our mouths are our first line of defense, protecting our bodies from food that is too hot to eat....
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New Book
I’m reading a new book titled The Shape of The Eye by George Estreich. What an excellent book! He is the father of Laura, who has Down Syndrome. Feeding issues are present throughout, along with an...
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Quotes
My last post referenced the book The Shape Of the Eye by George Estreich. I am enjoying this book so much. I have not been able to read it as I normally read a book, blasting through from start to …...
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Genetic Testing & DNA
Natalie has had LOTS of genetic testing. There’s never been a diagnosis that encompasses more than one or two of her … issues. I remember her old neurologist – back when she had seizures – said he was...
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New Symptoms. What to do.
Over the course of my daughter’s 14.5 year life, we have had new symptoms pop up every couple years. This year was no exception. She began fainting. It first happened on the beach at 8:00 in the...
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